Research Article - (2017) Volume 14, Issue 1
Wesley Y1, Dobal MT2, Gulstone J3, Archer LC4, Elias M5
1Independent Health Consultant, Y. Wesley Consulting, Rahway, New York
2University of the West Indies School of Nursing, St. Augustine, Trinidad and Tobago; 103 Sterling Street, Brooklyn, New York
3College of Nursing, New York City College of Technology, City University of New York, Brooklyn, New York
4Hackensack Medical Center, 30 Prospect Avenue, Hackensack, New York
5University Hospital, 38 Olympic Terrace, Irvington, New York
Corresponding Author:
Yvonne Wesley, RN, PhD
FAAN, Independent Health Consultant
Consulting LLC, P.O. Box 451, Rahway, USA
Tel: (732)382-2120
E-mail: ywesley@earthlink.net
Submitted date: December 07, 2016; Accepted date: December 19, 2016; Published date: December 26, 2016
Nurses make significant contributions to the American healthcare system and should have knowledge of major healthcare policies such as the Patient Protection and Affordable Care Act (PPACA), particularly those nurses in leadership. More nurse leaders of African descent need an understanding of PPACA to advocate for the policy provisions in the law as it relates to social determinants of health (SDH). This paper illustrates a need for a better understanding of PPACA among nurses of African descent to promote health equity.
Keywords
Patient protection and affordable care act; Social determinants of health; African American nurse leaders; Health equity; Health disparities.
Introduction
Nurses are the most trusted healthcare providers[1] and are ideally positioned to play an integral role in moving the U.S. healthcare system forward. With the passage into law, the Patient Protection and Affordable Care Act (PPACA) have provided opportunities that may help achieve health equity. Communicating aspects of the law with patients, families, and communities is a major objective of nursing leaders[2]. Fellows of the Leadership Institute for Black Nurses (LIBN) have a duty, as healthcare providers, to be equipped with the tools that promote health equity. LIBN Fellows were immersed in healthcare both professionally and educationally, and it was expected that they would have more knowledge of PPACA than those of the general public who were surveyed by Kaiser[3] in 2010. Understanding provisions in the law is fundamental to healthcare leadership, and nurse leaders have a mandate to remain current in policy and practice[2].
Kaiser[4] reported that by the end of 2015, the number of uninsured nonelderly adults had decreased by nearly 13 million since 2013 due to PPACA. The decrease was due, in part, to the removal of barriers such as pre-existing conditions and healthcare insurance coverage for dependent children up to age 26. In addition, the Department of Health and Human Services5 (DHHS) reported that PPACA has improved the quality of healthcare along with lowering the cost. For example, the cost of prescriptions for seniors has been reduced, and there are now tax credits for small business owners[5]. However, provisions in PPACA that improved access to care such as the health insurance exchanges remain a mystery to many. Moreover, awareness of the benefits of the law still eludes many currently including nurses and more importantly, those who it is intended to help the most. Therefore, this topic remains an issue and more education is needed among nurses as they advocate for healthcare consumers. Knowing fact from fiction is essential to effective leadership. It is necessary that nurses understand new and exciting programs in the U.S. healthcare system regardless of whether the nurse is:
• providing direct patient care as a staff nurse,
• directing patients’ care as an Advance Practice Nurse (APN),
• overseeing a nursing department as a healthcare administrator,
• preparing future nurses as a nurse educator, or
• Generating nursing science as a scholar.
Moreover, since many African American nurses work in urban settings and care for large minority populations, an understanding of PPACA is essential.
Purpose
The purpose of this paper is to (1) highlight policy provisions in PPACA; (2) discuss the link between social determinants of health (SDH) and PPACA; (3) compare knowledge levels of the American public in December, 2010 to nurses of African descent in December, 2013; and (4) recommend strategies to identify and improve areas of PPACA knowledge deficit.
Summary of PPACA
PPACA consists of two bills that were signed into law by President Barack Obama on March 23, 2010. The two bills consisted of the Patient Protection and Affordable Care Act (H.R. 3590) and Education Reconciliation Act of 2010 (H.R. 4872). Once signed by President Obama, the bills became Public Law 111-148[6] (Table 1) and Public Law 111-152[7] respectively (Table 2). Approximately two years later, on June 28, 2012, the Supreme Court rendered a final decision to uphold the healthcare law[8]. However, there are still efforts to repeal the law.
PPACA focuses on provisions to expand coverage, control healthcare costs, and improve the healthcare delivery system. One key provision of PPACA bans discrimination against preexisting conditions[9]. There are ten titles in the law6 which address various areas in healthcare that contribute to the improvement of the U.S. healthcare delivery system (Table 1). The focus of the provisions of PPACA are quality of healthcare, affordable healthcare for all Americans, improved efficiency of healthcare, prevention of chronic disease, and improvement of public health. Title V of PPACA focuses on improving workforce training and development, and encompasses several areas targeting nursing education and training aimed at adequately preparing nurses at all levels to serve the population.
Public Law 111-1527 adjusted revenue and financing schedules for private insurance coverage, Medicare, Medicaid; and reduced fraud, waste, and abuse in healthcare financing. In addition, key components of this law addressed investing in students and families through student loan reform, modifying financial assistance for higher education, and eligibility criteria for dependent children (Table 2). Together, Public Laws 111- 148 and 111-152 are referred to as the Patient Protection and Affordable Care Act.
Quality Affordable Health Care for All Americans a.Eliminates lifetime annual limits on benefits. Role of Public Programs a.Expands Medicaid availability to consumers previously ineligible. Quality and Efficiency of Health Care a.Links payment to quality performance on common, high-cost conditions. Chronic Disease and Public Health a.Modernizes disease prevention and public health systems. Health Care Workforce a.Encourages innovative review of the workforce.b.Increases the supply of health care workers. c.Enhances health care workforce education and training. d.Supports the existing health care workforce. e.Strengthens primary care and other workforce improvements. f.Improves access to health care services. Transparency and Program Integrity Access to Innovative Medical Therapies Community Living Assistance Services and Supports
Revenue Provisions Quality Affordable Care Details and source: The Patient Protection and Affordable Care Act Detailed Summary (https://www.dpc.senate.gov/ healthreformbill/healthbill52.pdf) |
Table 1: Components of the ten titles of the Patient Protection and Affordable Care Act 111-148.
Summary of Health Disparities
In the US, similar to other developed nations, there are social determinants of health[10]. For America, the Healthy People 2020[11] document organized the social determinants into five key areas that contribute to health disparities. They are (1) economic stability, (2) education, (3) social and community context, (4) health and healthcare, along with (5) neighborhood and built environment. These determinants are unequally experienced and produce health disparities.
Similar to the WHO, Schmidt, George and Bussey-Jones[12] made the point that non-biological determinants contribute to health disparities, and commented on the importance of teaching and learning strategies among healthcare providers that improve providers’ attitudes towards underserved and medically indigent populations. They contend that provider learning experiences that include social determinants of health improve cultural competency thereby producing a better understanding of the community served. When providers understand the community, Schmidt, George and Bussey-Jones[12] contend they are empowered to give patient-centered care.
Title I: Coverage, Medicare, Medicaid, and Revenues 1.Revised the formula for calculating the refundable tax credit.2.Imposed penalties on individuals who decline to purchase health care coverage. 3.Imposed penalties on employers with 50 or more employees who decline to offer employees health care coverage. 4.Modified the definition of "modified adjusted gross income." 5.Appropriated to the Fund for the administrative costs of carrying out PPACA and this Act. Subtitle B: Medicare Subtitle C: Medicaid Subtitle E: Provisions Relating to Revenue Subtitle F: Other Provisions 1.Amended the Trade Act of 1974 to make appropriations for the community college and career training grant program.Title II: Education and Health Part II: Student Loan Reform Subtitle B: Health Details and source: https://www.congress.gov/bill/111th-congress/house-bill/4872 |
Table 2: Highlights of Public Law 111-152 - Health Care and Education Reconciliation Act of 2010.
The 2012 National Healthcare Disparities Report (NHDR)[13] noted that some Americans receive worse care than others. These disparities were due, in part, to (1) provider biases, (2) differences in access to care, (3) poor provider-patient communication, and (4) patients with poor health literacy[13]. The US Congress mandated a report highlighting disparities in healthcare as it related to racial and socioeconomic factors. Unfortunately, one of the three major themes from these data showed that disparities are not changing[13]. Moreover, the report showed that people of African descent received worse care compared to Whites; and people of Hispanic descent received worse care than Whites of non-Hispanic descent in 40% of the quality and access measures. While the report indicated that overall quality is improving, access for minority and low income groups appeared to be getting worse, and disparities were not improving in 2012. Similarly, the Centers for Disease Control’s 2013 Health Disparities & Inequalities Report - United States[14], indicated that people of African descent have the highest rates of death from coronary heart disease and infant mortality compared to other racial and ethnic groups.
Wilensky and Satcher[15] acknowledge that social determinants such as the effect of poverty, education, treatment of women, employment opportunities, and limited access to medical care contributes to health disparities. They explain that by focusing on the social determinants of health, as a means of reducing disparities in health outcomes, attention is given to the overall environment where people live and work. Moreover, Wilensky and Satcher[15] postulate how social and economic policy impact health outcomes. As such, it is important that nurses of African descent understand PPACA and its effects on disparities.
PPACA’s Effect on Disparities
Noting that PPACA has numerous provisions that address SDH, LaVeist and Pierre16 advocate for a diverse healthcare workforce. They discussed how racial/ethnic minority groups are faced with disproportionately poorer environmental conditions, segregation, discrimination, and physician bias in medical treatment when compared to Whites. While there are expectations that PPACA will help establish health equity, data reports such as the 2014 National Healthcare Quality and Disparities Report, have not provided evidence supporting those expectations[17]. However, LaVeist and Pierre’s[16] conceptual framework which integrates SDH, health disparities, and workforce diversity may help explain the persistence of health disparities.
Further, LaVeist and Pierre[16] suggest that the lived experience of understanding how and why cultural factors affect illness and treatment adherence means that a diverse workforce will be able to better translate and modify these factors to improve patient care. In fact, they go so far as to suggest that the lack of a diverse workforce has the potential to foster cultural differences and biases that leads to barriers in access to quality care for racial/ethnic minority groups. Title V of PPACA also attempts to address this issue. As such, LIBN Fellows may be positioned to lead health equity initiatives since they may have personal experience with discrimination, biases, and poor health outcomes while their knowledge of PPACA may help to overcome these problems. LaVeist and Pierre[16] base their conceptual framework on growing evidence that a diverse workforce improves access, increases patient satisfaction, and ensures culturally competent care by addressing SDH.
LIBN Fellows and PPACA
Most of the Fellows (70%) reported the reason they applied to the Institute was to expand networking and career opportunities, and improve nursing leadership and patient outcomes. As shown in Table 3, 97% of the Fellows were female and in their mid-forties; 76% had a Master’s degree and had an average income of $96,000.
Demographics of the LIBN Fellows (n=100) | |
---|---|
Gender | 97% Female |
Age | 46 (SD=8.7) |
Income | $96K (SD=18) |
Education | 76% Master’s Degree |
Time in present position | 4.51 years (SD=5.25) |
Table 3: Demographics of the LIBN Fellows (n=100)
The Fellows were asked to complete the Motivation to Lead (MTL) scale[18]. LIBN Fellows were highly motivated to lead based on scores from the above-mentioned scale. In addition to completing MTL, they were asked to complete the Leadership Efficacy (LE) scale[19] which measured 15 dimensions of leadership. Fellows with increased scores on the MTL also reported increased scores on the LE. This provided support for MTL results and further suggested that the Fellows were highly motivated to lead.
Prepared and motivated to lead, LIBN Fellows were asked to complete ten questions published by Kaiser[3] public opinion survey. Since Chan and Drasgow’s theory[18] of leader development suggested that leaders must have social knowledge and skills; therefore, the expectation was that LIBN Fellows would have as much knowledge of PPACA as those surveyed by Kaiser[3] in the general public. Whether collective or individual, Chan and Drasgow posited that a leader’s knowledge of and/ or skills with social issues are important when developing new leaders[18].
Much of the nursing literature describes PPACA, and notes that it enhanced opportunities for nurses to lead the way in providing preventive and wellness services [American Nurses Association (ANA) President Karen Daley, 2012] [20]. According to ANA, care coordination for individuals as well as their families will help manage and prevent costly complications due to late entry into the healthcare system. Furthermore, PPACA is expected to utilize nurse practitioners and nurse midwives to their fullest extent, as the law increased patient-centered, team-based models of care such as medical homes. In addition, ANA suggested that advanced practice registered nurses (APRNs) were exploring opportunities under the new insurance marketplaces provided in PPACA.
Opportunities to address long-standing barriers to APRN practice such as getting credentialed and reimbursed by third party payers are essential to career options for nurses. Nurses are advocating for state insurance policymakers to embrace the value of APRNs as healthcare providers. LIBN Fellows pursuing leadership and career opportunities must provide guidance when implementing PPACA.
LIBN Fellows and PPACA Questions
A 10-question public poll created by the Kaiser Family Foundation Health Reform was utilized to assess knowledge of PPACA[3]. The general public was surveyed in 2010 and LIBN Fellows in 2013. Sixty-five of the 100 Fellows completed the online survey between April and November 2013. Results from the Kaiser survey of 1,207 adults indicated that, on average, Fellows barely outperformed those surveyed by Kaiser in December 2010. Moreover, in a smaller percentage of Fellows answered two of the questions correctly when compared to the Kaiser sample (Table 4). In other words, the Fellows did not outperform the general public on two of the questions three years later. Specifically, only 34% of Fellows answered the question regarding undocumented immigrants correctly compared to 42% of the Kaiser sample got the answer correct. The question regarding new government run insurance plans was answered correctly by only 25% of the Fellows compared to 27% of Kaiser’s sample. The low percentage of respondents, who correctly answered some of the questions, may be due, in part, to the numerous provisions within PPACA and general confusion regarding PPACA.
Some provisions in PPACA may reduce health disparities through increased workforce diversity[16]. Similar to Ewoldt[21], LeVeist and Pierre highlight provisions, such as loan forgiveness
True/false statements about Obama Care | Answers | %Correct LIBN (Kaiser) |
---|---|---|
Provides subsidies to low and moderate income Americans. | True | 87.3% (72%) |
Prohibits insurers from denying coverage because of health status. | True | 95.3% (67%) |
Provides tax credits to small businesses that offer coverage to their employees. | True | 88.9% (65%) |
Contains individual mandates. | True | 66.7% (64%) |
Expands the existing Medicaid program to cover low-income uninsured adults regardless of whether they have children. | True | 79.7% (62%) |
Allows a government panel to make decisions about end-of-life care for people on Medicare. | False | 62.3% (45%) |
Allows undocumented immigrants to receive financial help from the government to buy health insurance. | False | 33.9% (42%) |
Cuts benefits that were previously provided to all people on Medicare. | False | 83.9% (40%) |
Creates a new government run insurance plan to be offered along with private plans. | False | 24.6% (27%) |
Requires all businesses, even the smallest ones to provide health insurance for their employees. | False | 24.6% (25%) |
Table 4: True/false statements about Obama Care.
for nurses and grant opportunities for nursing students and faculty. However, the Kaiser[3] survey did not include items such as loan forgiveness and grant opportunities, but asked questions to see how well Americans understood what the new law entailed. Kaiser[3] provided five items that were part of the law and five items that were not.
Compared to the items that were true, the false items presented more of a problem for the respondents. As noted in, the false items were answered incorrectly more often than the true items. (Table 4) As such, the question is raised whether the items accurately measured the respondents’ knowledge, given both the nurses and general publics’ poor response to the false items. The items answered incorrectly most often focused on myths about end-of-life care, death panels; and undocumented immigrants receiving government support.
Impact of PPACA on Nurses
According to the 2012 National Healthcare Disparities Report[13] released May 2013 by The Agency of Healthcare Research and Quality, access to healthcare had not improved from 2002-2008 for minorities and people of racial ethnic backgrounds. This, in part, led to the enactment of PPACA. This law provided quality and affordable healthcare for all Americans. It also promoted prevention and wellness. It increased access to affordable health insurance coverage and supported improvement in primary care.
Nurses are at the forefront of public health and community outreach; and they can provide health education, implement prevention and promote wellness in the community. As educators, advocates, and healthcare providers, nurses are gatekeepers. It is through education and preventive care measures that nurses’ play a major role in affecting changes in the community according to ANA[20]. Whether by way of new programs piloting innovative healthcare or funding that supports nursing workforce development, ANA notes that PPACA has had a major impact on nurses and the profession.
This legislation helps nurses lead changes in healthcare that affect not only patients, but also the general public. For example, nurses can also make a huge impact in the community by establishing nurse-run managed care centers, which according to PPACA focus on preventive care.
Recommendations
PPACA has opened doors for nurses to practice to the full extent of their education[22]. Whether nurse managed care centers or increased nursing faculty, PPACA has an impact on nurses and nursing. Therefore, it is recommended that nurses take full advantage of education and career opportunities posed by PPACA.
LIBN Fellows, motivated and interested in leadership, barely outperformed the Kaiser[3] respondents on PPACA questions. However, the Fellows failed to reach the benchmark of 80% on 5 of the 10 questions. Given the time lapse from 2010 to 2013, it was expected that the Fellows would have had significantly more knowledge of PPACA compared to the general public. Based on these findings, it is recommended that leadership programs for nurses especially those addressing racial/ethnic minority groups include PPACA provisions in their syllabi. Professional nursing associations and trade-journals would be of service to their membership by highlighting provisions in PPACA. If nurses of African descent are to play an essential role in establishing health equity, knowledge of PPACA is imperative.
Expectations are high that PPACA will continue to have an impact on health equity. Quality and disparity measures need continued monitoring and the dissemination of findings are vital to increase awareness. It is recommended that Nurses of African descent, motivated to lead, remain vigilant for new evidence based approaches that address SDH among marginalized populations.
With expanded health insurance coverage, offered through PPACA, marginalized populations have increased access to healthcare. However, it should be noted that increased access does not limit the need for better lifestyle choices regarding exercise, eating, and smoking cessation. It is recommended that nurse leaders gain detailed understanding of new health plans that cover preventive services such as blood pressure and cholesterol screenings that focus on minimizing cardiovascular disease.
Lessons Learned
LIBN Fellows did not have a strong understanding of PPACA in 2013. Specifically, they were weak in the areas of individual mandates, government run insurance plans, and requirements on small businesses. In fact, when compared with Kaiser’s 2010 general public, the Fellows scored lower on some questions. Given the scores, it could still be questioned whether these groups of nurses of African descent who are highly motivated to lead are sufficiently prepared to advocate for provisions in PPACA.
The impact of PPACA is related to the ten titles (Table 1). Millions of Americans gained health insurance due to PPACA. Care for these patients was accomplished through increasing the healthcare workforce and expanding their scope of practice. They were encouraged to be innovative in training, recruitment, and retention. Specifically, enhancements in the healthcare workforce included education and training that targeted advanced nursing education and community health with nursemanaged health centers.
Nursing is an essential profession that can move America’s healthcare system forward, and those interested in leadership require current knowledge of policies that affect practice. If health disparities are to be abated, more healthcare providers of African descent must understand SDH and help close the gap by using all aspects of PPACA. However, efforts to repeal PPACA may have contributed to knowledge deficit by both the general public and the nurses. If PPACA is repealed, will there be high-quality healthcare for all? Will nursing continue to use innovative approaches for recruitment, retention, and education? And finally, will there be ongoing efforts to minimize and/or eliminate health disparities?